19-year-old from Maryland with unique genetic condition gifted special adaptive bike

ROCKVILLE, Md. (WJLA) — A man from Maryland with a rare genetic condition received a special gift from the Safeway Foundation and a local nonprofit on Thursday.

19-year-old LukeO’Neil suffers from a genetic condition called "DYRK1A" which is classified as an intellectual disability that can also lead to seizures, growth anomalies and sight issues among other things, according to the National Library of Medicine.

O’Neil was gifted a special adaptive bike from the Safeway Foundation and a nonprofit called "Preston's March for Energy." Preston's March was started by another man named Preston Buenaga, who suffers from Mitochondrial Disease which leaves him with low muscle tone and developmental delays.

In 2011, Buenaga received his own adaptive bike through a fundraiser. He and his family wanted to pay it forward by raising money for other people with special needs to realize their dream of riding their own bikes. The bikes can be quite expensive, ranging to thousands of dollars.

Preston's March for Energy says its true mission is "to provide children with special needs access to freedom, fun and physical exercise that an adaptive bike offers, promoting inclusion, and educating both those they serve and the community regarding the importance of physical fitness in the special needs population."

O’Neil's family was excited for him to receive the recumbent bike. His mother said that when he was younger,he participated in a learn-to-ride program, and family members learned to spot him. His parents took turns with him on a school track, but it wasn’t an ideal or safe option after a point. Now, with his new adaptive bike, Luke will be able to ride with his family and friends.

O’Neil's parents also added that he has his own Youtube page and a passion for protecting wolves. Happy riding, Luke!

For more information on Preston's March for Energy and how to donate,click here.